Caring for someone with AML? Start here. To view this video please enable JavaScript, and consider upgrading to a web browser that supports HTML5 video
When You're Caring for a Loved One When someone you love has relapsed or refractory FLT3m+ AML, it can be difficult to know where to turn. Here are some resources to support you and your loved one during treatment. COMMUNICATING DURING TREATMENT Practicing Self-Care While Caregiving Caregiver Resources and Support Groups AML=acute myeloid leukemia; FLT3=FMS-like tyrosine kinase 3; m+=mutation-positive.
Communicating With Doctors As a caregiver, you are an integral member of the care team. During treatment, you should feel comfortable asking questions and sharing concerns with doctors, nurses, and other members of the team.
Questions to Help Guide Conversations With Healthcare Professionals About My Loved One's Care How will treatment be monitored if it is taken at home? What tests should be scheduled before treatment? Whom can I call if I have questions and the doctor is unavailable? Are there any support groups you can recommend to us? About XOSPATA When will we know if XOSPATA is working? How will XOSPATA work differently from chemotherapy? What symptoms or side effects should we look out for? Who can help me find information about financial assistance programs? It might be helpful to take these questions with you to ask the care team during your next visit. DOWNLOAD QUESTIONS
Communicating With Your Loved One It can be hard for your loved one living with cancer to ask for help, even when they really need it. Supporting their emotional needs can be challenging. The following communication tips may help. How You Can Help Offer your loved one space to express themselves Listen to what they have to say and support their decisions about treatment Work together to figure out ways to maintain their independence, while offering support for things they can no longer do on their own Encourage them to set daily goals, and learn when to push or step back when their goals may no longer be possible Help find support groups that can provide additional care for your loved one
Remember: Sometimes, you and your loved one may feel overwhelmed while coping with the impact of cancer. Being open and patient with each other will benefit both of you as you continue forward.
Practicing Self-care While Caregiving Caregiving can sometimes feel overwhelming, physically and mentally. Taking time for your own needs can help you maintain a sense of self. Here are some things you can do for self-care: Continue to find time for your own hobbies and interests Create your own personal support system of friends and family Don't be afraid to reach out for help, even for things like chores or errands The stress of caregiving can be a lot to manage. If you're struggling, reach out to a member of the care team for help.
Caregiver Resources Below are some caregiver advocacy organizations that provide support for those caring for people living with cancer.
1-732-577-8899 1-855-227-3640 1-202-918-1013 Astellas is not affiliated with and does not endorse any of the organizations listed. The information provided is for informational purposes only and is not meant to replace the advice of a healthcare professional. Learn more about how to manage treatment at home