Managing Your
Treatment at Home

Caring for Yourself

Here are some things to keep in mind:

Speak Up

  • When it comes to side effects, don't hesitate to call your doctor or nurse
    • If you're unsure whether or not you have a cause for concern, ask sooner rather than later
    • Keep a journal to track when you feel side effects. This way, you can be as specific as possible when talking with your doctor
    • You are encouraged to report side effects to the FDA at 1-800-FDA-1088 or

Stick With It

  • To get the most out of your treatment, it's important to take your medicine as your doctor tells you to
    • Set an alarm to take your medicine at the same time every day

Find Your Routine

  • Once you're at home, create a routine for yourself
    • Plan meals according to your healthcare provider's recommendations
    • Ask your caregiver, a family member, or a friend to help with small tasks like scheduling appointments or taking notes during office visits

Stay You

  • Turn spare time into personal time. Find small things that you enjoy, whatever they may be
  • Little things you can do every day can help you make the most of your personal time

Groups for Additional Resources and Personal Support

There are a number of groups and organizations dedicated to providing helpful information and support for those with leukemia and their loved ones. The following organizations may be able to help.

The Leukemia & Lymphoma Society (LLS) is committed to providing information, resources, and support to those affected by blood cancers. The LLS website provides a community for people like you, as well as for family members and caregivers. Information Specialists can assist you through cancer treatment, financial and social challenges, and give accurate, up-to-date disease treatment and support information.

(888) 557-7177

CancerCare is a national organization that offers free professional support services and information. Their website provides online support 24/7, as well as telephone and face-to-face support groups led by oncology social workers. CancerCare also provides individualized counseling, financial assistance, and community programs.

(800) 813-HOPE

The Cancer Support Community is an organization that delivers free emotional support and psychosocial care for individuals impacted by cancer, including their families and friends, through either local on-site locations or a toll-free helpline.

(888) 793-9355

Astellas is not affiliated with and does not endorse any of the listed organizations. The information provided by Astellas is for informational purposes only and is not meant to replace the advice of a healthcare professional.